There are currently 15 active clinical trials seeking participants for Huntington Disease research studies. The states with the highest number of trials for Huntington Disease participants are New York, California, Florida and Ohio.
FLOWER: Following Longitudinal Outcomes With Epidemiology for Rare Diseases
Recruiting
FLOWER is a completely virtual, nationwide, real-world observational study to collect, annotate, standardize, and report clinical data for rare diseases. Patients participate in the study by electronic consent (eConsent) and sign a medical records release to permit data collection. Medical records are accessed from institutions directly via eFax or paper fax, online from patient electronic medical record (EMR) portals, direct from DNA/RNA sequencing and molecular profiling vendors, and via elect... Read More
Gender:
ALL
Ages:
All
Trial Updated:
11/12/2024
Locations: xCures, Los Altos, California
Conditions: Alpha-Thalassemia, Beta-Thalassemia, Amyloidosis, Amyotrophic Lateral Sclerosis, Creutzfeld-Jakob Disease, Cystic Fibrosis, Duchenne Muscular Dystrophy, Early-Onset Alzheimer Disease, Ehlers-Danlos Syndrome, Huntington Disease, Gaucher Disease, GM1 Gangliosidosis, Myasthenia Gravis, Pompe Disease, Sickle Cell Disease, Transthyretin Amyloid Cardiomyopathy, Rare Diseases
Longitudinal Endpoint Assessment of Disease Burden in HD
Recruiting
LEAD-HD is intended to collect and analyze self-reported health information from individuals with Huntington Disease (HD) or prodromal HD participating in a 24-month longitudinal natural history study using remote technologies.
Gender:
ALL
Ages:
18 years and above
Trial Updated:
07/02/2024
Locations: Huntington Study Group, Rochester, New York
Conditions: Huntington Disease
Prospective Single-Timepoint Huntington's Disease Biospecimen Collection Study
Recruiting
OBJECTIVES: The primary study objective is to collect blood from participants with Huntington's Disease in order to validate a CE marked Cytosine, Adenine, Guanine (CAG) assay for use in future studies for Huntington's Disease. The secondary study objective is to create a biorepository that can be used to identify disease associated biomarkers and potential targets with immune and multi-omics profiling. The disease sample collection and analysis will be the foundation for an extensive network... Read More
Gender:
ALL
Ages:
Between 25 years and 65 years
Trial Updated:
04/16/2024
Locations: Sanguine Biosciences, Inc., Woburn, Massachusetts
Conditions: Huntington Disease, Huntington's Dementia, Huntington Disease, Late Onset, Huntington; Dementia (Etiology)