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Pompe Disease Clinical Trials in Canada
A listing of 1 Pompe Disease clinical trials actively recruiting volunteers for paid trials and research studies in various therapeutic areas.
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There are currently 1 active clinical trials seeking participants for Pompe Disease research studies. The states with the highest number of trials for Pompe Disease participants are .
Pompe Disease Registry Protocol
Recruiting
The Pompe Registry is a global, multicenter, international, longitudinal, observational, and voluntary program for patients with Pompe disease, designed to track the disease's natural history and outcomes in patients, both treated and not. Data from the Registry are also used to fulfill various global regulatory commitments, to support product development/reimbursement, and for other research and non-research related purposes.
The objectives of the Registry are:
* To enhance understanding of t... Read More
The Pompe Registry is a global, multicenter, international, longitudinal, observational, and voluntary program for patients with Pompe disease, designed to track the disease's natural history and outcomes in patients, both treated and not. Data from the Registry are also used to fulfill various global regulatory commitments, to support product development/reimbursement, and for other research and non-research related purposes.
The objectives of the Registry are:
* To enhance understanding of the variability, progression, identification, and natural history of Pompe disease, with the ultimate goal of better guiding and assessing therapeutic intervention.
* To assist the Pompe medical community with the development of recommendations for monitoring patients, and to provide reports on patient outcomes, to optimize patient care.
* To characterize the Pompe disease population.
* To evaluate the long-term effectiveness of alglucosidase alfa. Read Less
Gender:
ALL
Ages:
All
Trial Updated:
08/06/2025
Locations: University Alabama at Birmingham- Site Number : 840106, Birmingham, Alabama +270 locations
University Alabama at Birmingham- Site Number : 840106, Birmingham, Alabama
Barrow Neurological Institute- Site Number : 840087, Phoenix, Arizona
Phoenix Children's Hospital- Site Number : 840003, Phoenix, Arizona
University of Arizona- Site Number : 840015, Tucson, Arizona
Arkansas Childrens Hospital- Site Number : 840109, Little Rock, Arkansas
University of Arkansas for Medical Sciences- Site Number : 840113, Little Rock, Arkansas
University of California at Irvine- Site Number : 840036, Irvine, California
Loma Linda University- Genetics- Site Number : 840070, Loma Linda, California
Southern California Permanente Medical Group- Site Number : 840108, Los Angeles, California
USC Health Sciences Center Dept of Genetics- Site Number : 840082, Los Angeles, California
Children's Hospital Oakland- Site Number : 840029, Oakland, California
Children's Hospital of Orange County- Site Number : 840074, Orange, California
UC Davis MIND Institute- Site Number : 840010, Sacramento, California
University of California at San Diego- Site Number : 840007, San Diego, California
University of California at San Francisco- Site Number : 840051, San Francisco, California
Stanford University Pediatrics- Site Number : 840021, Stanford, California
Children's Hospital Colorado - Aurora- Site Number : 840069, Aurora, Colorado
Yale - Site Number : 840047, New Haven, Connecticut
Children's National Medical Center- Site Number : 840067, Washington, District of Columbia
University of Florida College of Medicine- Site Number : 840012, Gainesville, Florida
University of Florida Pediatrics Genetics- Site Number : 840121, Jacksonville, Florida
University Of Miami SOM- Site Number : 840006, Miami, Florida
University of Florida-Genetics- Site Number : 840096, Tampa, Florida
Emory University School of Medicine- Human Genetics- Site Number : 840060, Decatur, Georgia
University of Colorado at Denver Genetics- Site Number : 840068, Aurora, Illinois
Ann and Robert Lurie Children's Hospital- Site Number : 840011, Chicago, Illinois
Ann and Robert Lurie Children's Hospital- Site Number : 840013, Chicago, Illinois
Rush University Medical Center Genetics- Site Number : 840079, Chicago, Illinois
Indianapolis University School of Medicine- Site Number : 840027, Indianapolis, Indiana
University of Iowa- Site Number : 840032, Iowa City, Iowa
University of Kansas Medical Center- Site Number : 840020, Kansas City, Kansas
University of Louisville- Genetics- Site Number : 840030, Louisville, Kentucky
Maine Medical Center Pediatrics- Site Number : 840064, Portland, Maine
John Hopkins- Site Number : 840044, Baltimore, Maryland
Massachusetts General Hospital-Genetics- Site Number : 840062, Boston, Massachusetts
Boston Children's Hospital- Site Number : 840092, Boston, Massachusetts
Baystate Health- Site Number : 840002, Springfield, Massachusetts
University of Michigan Pediatrics- Site Number : 840107, Ann Arbor, Michigan
Children's Hospital of Michigan- Site Number : 840066, Detroit, Michigan
Spectrum for Health- Site Number : 840019, Grand Rapids, Michigan
Infusion Associates- Site Number : 840050, Grand Rapids, Michigan
Children's Health Care- Site Number : 840114, Minneapolis, Minnesota
Children's Hospital and Clinics of Minnesota- Site Number : 840046, Minneapolis, Minnesota
University of Minnesota Medical Center Pediatrics- Site Number : 840035, Minneapolis, Minnesota
University of Minnesota Medical Center Pediatrics- Site Number : 840076, Minneapolis, Minnesota
University of Missouri Health System Department of Genetics- Site Number : 840031, Columbia, Missouri
Children's Mercy Hospital- Pediatrics- Site Number : 840063, Kansas City, Missouri
Washington University of St. Louis- Site Number : 840100, Saint Louis, Missouri
University of Nebraska Medical Center- Pediatrics- Site Number : 840084, Omaha, Nebraska
Children's Specialty Center of Nevada- Site Number : 840008, Las Vegas, Nevada
Cooper Health Center- Site Number : 840098, Camden, New Jersey
Hackensack University Medical Center- Site Number : 840101, Hackensack, New Jersey
Atlantic Health System- Site Number : 840099, Morristown, New Jersey
St. Peter's University Hospital- Site Number : 840016, New Brunswick, New Jersey
St. Joseph's Children's Hospital- Site Number : 840057, Paterson, New Jersey
Northwell Health- Site Number : 840102, Manhasset, New York
New York University School Of Medicine- Site Number : 840040, New York, New York
Metropolitan Hospital Center- Site Number : 840110, New York, New York
Mt. Sinai School of Medicine- Site Number : 840005, New York, New York
University of Rochester Medical Center SOM- Site Number : 840105, Rochester, New York
State University of New York- Site Number : 840052, Syracuse, New York
New York Medical College- Site Number : 840039, Valhalla, New York
Carolinas Medical Center Hospital- Site Number : 840065, Charlotte, North Carolina
Duke University Medical Center Genetics Dept- Site Number : 840037, Durham, North Carolina
University of Cincinnati Cancer Institute- Site Number : 840124, Cincinnati, Ohio
Cincinnati Children's Hospital-Genetics- Site Number : 840041, Cincinnati, Ohio
University Hospitals Cleveland Medical Center- Site Number : 840119, Cleveland, Ohio
Cleveland Clinic Foundation Pediatrics- Site Number : 840048, Cleveland, Ohio
Nationwide Children's Hospital- Site Number : 840091, Columbus, Ohio
LSD Data Registry Site LLC- Site Number : 840094, Dublin, Ohio
Oregon Health & Sciences University- Site Number : 840080, Portland, Oregon
Oregon Health and Science University- Site Number : 840095, Portland, Oregon
Oregon Health and Scinece University- Site Number : 840038, Portland, Oregon
Penn Hershey Medical Center- Site Number : 840061, Hershey, Pennsylvania
Penn State Health Milton South Hershey Medical Center- Site Number : 840126, Hershey, Pennsylvania
Children's Hospital of Philadelphia HUP Medical Genetics- Site Number : 840089, Philadelphia, Pennsylvania
Children's Hospital of Philadelphia- Site Number : 840034, Philadelphia, Pennsylvania
UPMC- Site Number : 840014, Pittsburgh, Pennsylvania
University of Pittsburgh- Site Number : 840023, Pittsburgh, Pennsylvania
Rhode Island Hospital Genetics- Site Number : 840053, Providence, Rhode Island
Greenwood Genetcs- Site Number : 840055, Greenville, South Carolina
Vanderbilt University Hospital-Pediatrics- Site Number : 840049, Nashville, Tennessee
Baylor Research Center- Site Number : 840058, Dallas, Texas
Cook Children's Health Care System- Site Number : 840024, Fort Worth, Texas
University of Utah Department of Medical Genetics- Site Number : 840043, Salt Lake City, Utah
University of Virginia School of Medicine-Pediatrics- Site Number : 840078, Charlottesville, Virginia
O&O Alpan, LLC- Site Number : 840025, Fairfax, Virginia
Children's Hospital of the Kings Daughters- Site Number : 840072, Norfolk, Virginia
Seattle Children's Hospital- Site Number : 840028, Seattle, Washington
University Of Washington Medical Center- Site Number : 840059, Seattle, Washington
Multicare Health System ¿ Mary Bridge Childrens Hospital- Site Number : 840115, Tacoma, Washington
Children's Hospital of Wisconsin-Pediatrics- Site Number : 840054, Milwaukee, Wisconsin
Investigational Site Number : 152218, Caba, Buenos Aires
Investigational Site Number : 153194, Caba, Buenos Aires
Investigational Site Number : 153032, Ciudad Autónoma de Buenos Aires, Buenos Aires
Investigational Site Number : 036013, Westmead, New South Wales
Investigational Site Number : 151069, Westmead, New South Wales
Investigational Site Number : 154087, Brisbane, Queensland
Investigational Site Number : 152096, Brisbane, Queensland
Investigational Site Number : 151015, Murdoch, Western Australia
Investigational Site Number : 150722, Antwerp, Not set
Investigational Site Number : 154298, Bruges, Not set
Investigational Site Number : 056010, Brussels, Not set
Investigational Site Number : 150684, Bruxelles, Not set
Investigational Site Number : 152072, Edegem, Not set
Investigational Site Number : 152295, Gent, Not set
Investigational Site Number : 153179, Gosselies, Not set
Investigational Site Number : 151668, Leuven, Not set
Investigational Site Number : 152126, Leuven, Not set
Hospital Universitario Walter Cantidio- Site Number : 076011, Fortaleza, Ceará
Hospital Geral e Maternidade de Cuiabá- Site Number : 076003, Cuiabá, Mato Grosso
Hospital de Clinicas de Porto Alegre- Site Number : 076008, Porto Alegre, Rio Grande Do Sul
Hospital das Clinicas da Faculdade de Medicina de Ribeirao Preto- Site Number : 076009, Ribeirão Preto, São Paulo
Instituto Fernandes Figueira - FIOCRUZ- Site Number : 076001, Rio de Janeiro, Not set
Instituto de Genética e Erros Inatos do Metabolismo- Site Number : 076002, São Paulo, Not set
Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo- Site Number : 076004, São Paulo, Not set
Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo- Site Number : 076007, São Paulo, Not set
Investigational Site Number : 100001, Sofia, Not set
Investigational Site Number : 124014, Calgary, Alberta
Investigational Site Number : 124002, Edmonton, Alberta
Investigational Site Number : 124010, Vancouver, British Columbia
Investigational Site Number : 124011, Vancouver, British Columbia
Investigational Site Number : 124019, Winnipeg, Manitoba
Investigational Site Number : 124022, Moncton, New Brunswick
Investigational Site Number : 124007, Hamilton, Ontario
Investigational Site Number : 124021, London, Ontario
Investigational Site Number : 124006, Toronto, Ontario
Investigational Site Number : 124004, Montreal, Quebec
Investigational Site Number : 124018, Montreal, Quebec
Investigational Site Number : 124001, Sherbrooke, Quebec
Investigational Site Number : 152002, Punta Arenas, Not set
Investigational Site Number : 152001, Santiago, Not set
Investigational Site Number : 152380, Beijing, Not set
Investigational Site Number : 153202, Beijing, Not set
Investigational Site Number : 153203, Beijing, Not set
Investigational Site Number : 152379, Guangzhou, Not set
Investigational Site Number : 152381, Jinan, Not set
Investigational Site Number : 157250, Jinan, Not set
Investigational Site Number : 152356, Shanghai, Not set
Investigational Site Number : 152382, Shanghai, Not set
Investigational Site Number : 170001, Bogota, Not set
Investigational Site Number : 1910001, Zagreb, Not set
Investigational Site Number : 1910002, Zagreb, Not set
Investigational Site Number : 150809, Praha 2, Not set
Investigational Site Number : 151229, København Ø, Not set
Investigational Site Number : 250010, Bordeaux, Not set
Investigational Site Number : 250012, Brest, Not set
Investigational Site Number : 250003, BRON Cedex, Not set
Investigational Site Number : 250007, BRON Cedex, Not set
Investigational Site Number : 250009, Caen, Not set
Investigational Site Number : 250015, La Tronche, Not set
Investigational Site Number : 250008, Lille, Not set
Investigational Site Number : 250002, Marseille Cedex 05, Not set
Investigational Site Number : 250017, Nancy, Not set
Investigational Site Number : 250019, Nantes, Not set
Investigational Site Number : 250005, Nice, Not set
Investigational Site Number : 250011, Nîmes, Not set
Investigational Site Number : 250004, Paris, Not set
Investigational Site Number : 250001, Paris, Not set
Investigational Site Number : 250018, St Priest en Jarez, Not set
Investigational Site Number : 250016, Strasbourg, Not set
Investigational Site Number : 250014, Toulouse, Not set
Investigational Site Number : 250006, Tours, Not set
Investigational Site Number : 25013, Vannes Cedex, Not set
Investigational Site Number : 152041, Berlin, Not set
Investigational Site Number : 151686, Berlin, Not set
Investigational Site Number : 152293, Berlin, Not set
Investigational Site Number : 152234, Bochum, Not set
Investigational Site Number : 152200, Bonn, Not set
Investigational Site Number : 152108, Freiburg, Not set
Investigational Site Number : 154150, Gießen, Not set
Investigational Site Number : 152045, Halle (Saale), Not set
Investigational Site Number : 154215, Hamburg, Not set
Investigational Site Number : 150031, Mainz, Not set
Investigational Site Number : 152075, München, Not set
Investigational Site Number : 152299, Münster, Not set
Investigational Site Number : 300001, Thessaloniki, Not set
Investigational Site Number : 344001, Kowloon, Not set
Investigational Site Number : 3480009, Debrecen, Not set
Investigational Site Number : 3480007, Nyíregyháza, Not set
Investigational Site Number : 3480011, Pécs, Not set
Investigational Site Number : 356003, Ahmedabad, Not set
Investigational Site Number : 356001, Kolkata, Not set
Investigational Site Number : 3560004, Secunderabad, Not set
Investigational Site Number : 356002, Vellore, Not set
Investigational Site Number : 360001, Jakarta, Not set
Investigational Site Number : 3760002, Beer Sheva, Not set
Investigational Site Number : 3760001, Haifa, Not set
Investigational Site Number : 3760003, Tel Aviv, Not set
Investigational Site Number : 380007, Milan, Milano
Investigational Site Number : 380011, Padua, Padova
Investigational Site Number : 380008, Brescia, Not set
Investigational Site Number : 380006, Cagliari, Not set
Investigational Site Number : 380014, Ferrara, Not set
Investigational Site Number : 380005, Firenze, Not set
Investigational Site Number : 380004, Genova, Not set
Investigational Site Number : 380013, Messina, Not set
Investigational Site Number : 380016, Milano, Not set
Investigational Site Number : 380009, Monza, Not set
Investigational Site Number : 380010, Napoli, Not set
Investigational Site Number : 380019, Napoli, Not set
Investigational Site Number : 380002, Padova, Not set
Investigational Site Number : 380003, Pavia, Not set
Investigational Site Number : 157218, Pisa, Not set
Investigational Site Number : 380015, Roma, Not set
Investigational Site Number : 380012, Roma, Not set
Investigational Site Number : 380017, Torino, Not set
Investigational Site Number : 380001, Udine, Not set
Investigational Site Number : 392106, Sakyo-ku, Kyoto
Investigational Site Number : 392105, Ginowan, Okinawa
Investigational Site Number : 4000001, Amman, Not set
Investigational Site Number : 153178, Yangsan-si, Gyeongsangnam-do
Investigational Site Number : 153180, Seoul, Seoul-teukbyeolsi
Investigational Site Number : 153196, Seoul, Seoul-teukbyeolsi
Investigational Site Number : 153176, Seoul, Seoul-teukbyeolsi
Investigational Site Number : 153191, Daejeon, Not set
Investigational Site Number : 153192, Seoul, Not set
Investigational Site Number : 151149, Seoul, Not set
Investigational Site Number : 153212, Seoul, Not set
Investigational Site Number : 153222, Seoul, Not set
Investigational Site Number : 154225, Kuwait, Not set
Investigational Site Number : 4220004, Beirut, Not set
Investigational Site Number : 458001, Jalan Pahang, Not set
Investigational Site Number : 458002, Kuala Lumpur, Not set
Investigational Site Number : 152029, Rotterdam, Not set
Investigational Site Number : 154264, Karachi, Not set
Investigational Site Number : 154266, Lahore, Not set
Investigational Site Number : 608001, Manila, Not set
Investigational Site Number : 150575, Warszawa, Not set
Investigational Site Number : 620008, Coimbra, Not set
Investigational Site Number : 620006, Lisboa, Not set
Investigational Site Number : 154099, Bucuresti, Not set
Investigational Site Number : 643002, Moscow, Not set
Investigational Site Number : 682004, Makkah, Not set
Investigational Site Number : 682001, Qatif, Not set
Investigational Site Number : 6880001, Belgrade, Not set
Investigational Site Number : 702001, Singapore, Not set
Investigational Site Number : 703001, Bratislava, Not set
Investigational Site Number : 154093, Chiayi, Not set
Investigational Site Number : 152152, Hualian, Not set
Investigational Site Number : 152246, Kaohsiung City, Not set
Investigational Site Number : 152244, Kaohsiung, Not set
Investigational Site Number : 151534, New Taipei City, Not set
Investigational Site Number : 151500, Putz City, Chia-yi, Not set
Investigational Site Number : 151181, Taichung, Not set
Investigational Site Number : 151179, Taichung, Not set
Investigational Site Number : 153248, Tainan City, Not set
Investigational Site Number : 152153, Tainan City, Not set
Investigational Site Number : 151182, Taipei City, Not set
Investigational Site Number : 152226, Taipei City, Not set
Investigational Site Number : 152321, Taipei, Not set
Investigational Site Number : 153158, Taoyuan City, Not set
Investigational Site Number : 764002, Bangkok, Not set
Investigational Site Number : 764003, Bangkok, Not set
Investigational Site Number : 764004, Bangkok, Not set
Investigational Site Number : 764001, Bangkok, Not set
Investigational Site Number : 764005, Khon Kaen, Not set
Investigational Site Number : 7840001, Dubai, Not set
Investigational Site Number : 151340, Cambridge, Cambridgeshire
Investigational Site Number : 152334, Cardiff, Cardiff [Caerdydd Gb-crd]
Investigational Site Number : 152287, Birmingham, England
Investigational Site Number : 151646, London, London, City Of
Investigational Site Number : 150303, London, London, City Of
Investigational Site Number : 150964, Salford, Manchester
Investigational Site Number : 154240, Birmingham, Not set
Investigational Site Number : 152156, Glasgow, Not set
Investigational Site Number : 151123, London, Not set
Investigational Site Number : 150455, Manchester, Not set
Investigational Site Number : 152087, Newcastle, Not set
Investigational Site Number : 154212, Hanoi, Not set
Investigational Site Number : 704002, Ho Chi Minh City, Not set
Conditions: Glycogen Storage Disease Type II, Pompe Disease
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