The state of Massachusetts currently has 4 active clinical trials seeking participants for Narcolepsy research studies. These trials are conducted in various cities, including Boston, Worcester, Springfield and Burlington.
Improving Social Relationships for Adolescents with Central Disorders of Hypersomnolence
Recruiting
The goal of this study is to test a web-based psychoeducational resource for adolescents with central disorders of hypersomnolence and their families. The investigators hope to assess the website's usability, acceptability, and feasibility, as well as its potential effect on social relationship health. Participants will be asked to review the content of the psychoeducational websites. The participants will then provide feedback on the website, as well as the adolescent's social relationships an... Read More
Gender:
ALL
Ages:
Between 10 years and 17 years
Trial Updated:
02/16/2025
Locations: Boston Children's Hospital, Boston, Massachusetts
Conditions: Narcolepsy Type 1, Narcolepsy Type 2, Idiopathic Hypersomnia
A Study of TAK-861 for the Treatment of Narcolepsy Type 1
Recruiting
The main aim of this study is to learn how effective TAK-861 is in improving excessive sleepiness during the day (called excessive daytime sleepiness or EDS) after 3 months of treatment. Other aims are to learn how effective TAK-861 is in lowering the number of sudden, unexpected attacks of muscle weakness while staying conscious (cataplexy) in a week; to learn the effect TAK-861 has on participants' ability to maintain attention, participant's overall quality of life, the spectrum of narcolepsy... Read More
Gender:
ALL
Ages:
Between 16 years and 70 years
Trial Updated:
02/13/2025
Locations: Takeda Site 45, Boston, Massachusetts
Conditions: Narcolepsy Type 1
A Study of TAK-861 for the Treatment of Selected Central Hypersomnia Conditions
Recruiting
The main aim is to evaluate the safety and tolerability of TAK-861 on participants with type 1 narcolepsy, who were exposed to previously tested doses of TAK-861.
Gender:
ALL
Ages:
Between 16 years and 70 years
Trial Updated:
09/24/2024
Locations: Neurocare Inc, Newton, Massachusetts
Conditions: Narcolepsy Type 1
Child and Adolescent Registry for Participants With Narcolepsy
Recruiting
CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed. The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email catnap@pulseinfoframe.com.... Read More
Gender:
ALL
Ages:
17 years and below
Trial Updated:
08/13/2024
Locations: Boston Children's Hospital, Boston, Massachusetts
Conditions: Narcolepsy